Tuesday, 26 February 2019

The Rabbit under the bed



Arriving late to a funeral is bad form.  Our timing was all off on Sunday, and we were running spectacularly late for a lunch in celebration of Andrew’s Aunt’s life.  The family are the kindest, gentlest, most welcoming people in the world, and they were not bothered by our tardiness at all.

One of the reasons (but not the only…) we were behind schedule was because TD had a low.  She plummeted from 3.5 (which is already low) to a staggering (literally) 2.3.  The Super Cs didn’t touch it, so she had a Chocolate Gu (a brand name for flavoured glucose).  Barely able to walk, she staggered to the car and we set off.  The effects of a low can last a long time – much longer than it takes for the glucose number to rise.  She was feeling off well into the afternoon.

There was a lot of emotion flowing at the luncheon.  Aunt Hazel had died surrounded by her family, in a home she loved, with a bunny under the bed. (It’s a free range rabbit I was told, and often naps on the bed in the afternoon sunshine.)  Andrew’s cousins and some of the grandchildren spoke of this remarkable lady who set out to enjoy every minute of her 92 years.  It was a profoundly simple and honest celebration.

Death is a difficult topic to broach on the best of days, and yet it shapes so much of our lives, and how we see ourselves.  Time becomes consciously precious, a limited resource.  A gift if you like.   

To be brutally honest, one of the consequences of a person with diabetes going too low is Death.  It does not happen to many people, but it does happen.  How do you not frighten a teenager with this thought while still imploring them to look after themselves?  Yes – teenagers die of many things – accidents, abuse, illness, the proverbial bus…. Diabetes just adds one more liability to the list.  I have told TD it will not happen on my watch, and I am determined to keep that promise.  And she will play her part in looking after herself and asking for help when she needs it.  You see, when she is low, her behaviour can be erratic – a mixture of utter fatigue, shakiness and silliness.  And at night when she is low, she is asleep and looks just the same as when she is not low and asleep. 

I imagine any parent cannot bear the thought of anything awful happening to their child.  I know I can’t.  And while I can live my life and carry on with daily routines, diabetes lurks under the surface of our family, like a monster under a child’s bed.

The fear of monsters is the fear of the unknown and dangerous.  If we can acknowledge our fears, and drag them out into the open, maybe the monsters will turn into something softer and more comforting.  When TD and I needed a little space at the celebration lunch, we went to talk to the rabbit under the bed.  I think looking for the rabbit instead of the monster might just be a calmer way of living.

 And to Hazel : your legendary zest for life is an inspiration.













Friday, 1 February 2019

Adulting

Well, there went January.  All of a sudden the year has truly and properly started.  TD's annual school band camp has come and gone, and she handles these times away with growing confidence.  I am getting a bit better too, and once she and I had set out a plan (SMS her glucose number to us at 6.30am, 9pm and 1.30am...) I felt, if not completely confident, more reassured that the weekend would be ok.

The view from our stoep at Wellington
Andrew and I decamped nearby in Wellington and caught up with our reading, chatting, knitting and relaxing, spending long lazy hours near the pool or admiring the calm surrounding. It was just what we needed. Especially the chatting.





Energy is still in short supply here, and on Monday the T-shirt slogan that became popular a few years ago, suddenly made sense :  "I can't Adult today." When I first saw it, I had to ask the kids what it meant and they patiently explained that the youth of today are quite happy to use nouns as verbs. I find a lot of grammar usage strange these days.  But it all made sense on Monday :  I could do with a patch where I don't have to shoulder quite so many responsibilities, where I can doodle pictures, play in the garden, nap in the afternoon and have frank discussions with other children about bugs and whose cat has the louder purr.

TD's year has started with gusto - her extramurals keep her busy everyday.  She is taking the academic year with the seriousness that grade 10 demands, and she is handling it all with grace and wonky sugar levels.  There are so many factors that affect her glucose number - tiredness and stress being two of the major ones.  But this is life -warts and all, so everyday we try to balance the scales of insulin and glucose.  Some days we triumph more than others.

This week the new Gucci campaign was launched.  It is called the Future is Fluid, and it features youngsters from around the world who are hoping to create a more tolerant society, particularly around gender issues.  If you know who you are looking for, you may spot TD in the background.
Here is a link: https://www.youtube.com/watch?v=nFUvLNL7E8Q.   I am beyond proud of TD and her desire to be part of a better world.

So I thought I would like to offer my campaign for a better world too.  I have decided that on those days that I "can't Adult"  I am going to change the definition of what it means to be an adult.
Andrew getting into the swing of Adulting
Who says care-free doodling, playing, napping and frank discussions are only for children.  I know I will be able to handle the hard stuff a whole lot better if I spend more time doing the playful stuff.  Keen to join me? - I am happy to share the box of crayons with you, and while we are colouring in outside the lines we can chat about the serious business of being an adult.  Or bugs and cats if you prefer!